Thursday, August 31, 2017
Thank you Audrey. The words and melody of the hymn Whispering Hope resonates in my mind this morning. In the night I gave thought to the words I might write today but opening Facebook this morning my heart lurches toward the sorrow of another family facing loss. The loss the Short family of Port Aux Basques,NFLD is feeling this morning is deep and debilitating and beyond understanding. I met Stacey and Lew two years ago and got to meet their beautiful Ava. At that time they were perplexed with the frequency of seizures that had started in their healthy oldest granddaughter. They had been told she had epilepsy and were doing their best to deal with what that would mean. Shortly after the diagnosis changed and they were told Ava had Batten Disease. They knew nothing about that disease but as they learned about it they quickly realized the nightmare that was to come. Many hospital trips and many life changing setbacks had just begun. As a family they faced each one with as much courage as they could muster and always with strong, determined love and loyalty. Ava had a little sister and another one soon to be born and her Mom faced all Ava's disease threw at them while still mothering her younger daughter and new baby. They gave Ava every fiber of their being as she fought bravely. Last night Ava's brave fight was over. Her little body succumbed to the horrors of the disease and her beautiful smile was extinguished. At Audrey's funeral yesterday I heard and witnessed tributes to her beautiful smile and loving presence for almost 93 years on this earth. How are we to understand why one smile lasts 93 years and one only 6 short ones? There is no understanding and only the whisper of hope in such sorrow.